Explanation:

It is still a busy time within the Global Registries Platform team, where we are working to assist registries with the on-boarding of Option 1 registries, for the use of the platform and assisting Option 2 registries with the dataset Project Managers to implement the updated datasets for SMA and DMD.

The platform support team will continue to assist the registries and dataset Project Managers to help increase the uptake of the Global Registries Platform but also to enhance the user experience and make the implementation of the new dataset as smooth as possible. This will also help the registries and support team later in the year when the first transfer of de-identified patient data is made to the Central Data Warehouse.